The childhood cancer journey does not end once the treatment ends. These children face the emotional challenge of fear of cancer relapse, known as survivorship anxiety. This is a normal reaction from the children and their families. Knowing the causes can help manage it to transform back to life.

Why does fear of relapse occur?

Cancer is a traumatic experience for children, with the painful procedures, isolation, and changes to their bodies. The hospital, certain smells, or medical language can affect them negatively. Cancer relapse anxiety occurs in children due to this trauma and an understanding, subconsciously, that it can return. It is a protective but weakening mental response.

Warning signs

Parents must keep an eye out for these signs of increasing fear of relapse in children.

• Emotional: Increased irritability, sadness, constant feelings of doom, and frequent crying.
• Physical: Recurring stomachaches or headaches, unknown fatigue, changes in sleep and appetite.
• Behavioral: Clinginess, regression to younger behaviors like bedwetting, avoidance of school and social events, and excessive need for reassurance.

Knowing triggers

Fear is increased by particular events. Knowing these triggers can help parents prepare the child and provide the necessary emotional support during such times. Usual triggers are:

• Scans and follow-ups: Appointments for scans, blood tests, or check-ups can cause extreme anxiety.
• Changes in the body: Diseases like a common cold, bruise, or ache can be taken by the child or parent as a sign of cancer relapse.

Help from parents

To help children cope with the fear of relapse, a combination of communication and structure is needed. Openly communicate and validate the child without any judgment. And avoid using dismissive phrases like “You are fine; don't worry.” Develop a routine, as predictability can provide comfort. Normal routines like school, mealtime, and bedtime can give a sense of stability and control in a once chaotic world. Focus on wellness and not illness. Celebrate small milestones, do normal activities, and enjoy the present moment.

Strategies to help cope and rebuild resilience

There are proactive ways to cope and help manage fear or relapse in the long run. Perform deep-breathing exercises or short meditation sessions for anxiety spikes. Spend time on hobbies like drawing, journaling, or music to help process complicated emotions non-verbally. Focus on what the children can control, like eating their healthy meals and exercising. These small successes build resilience.

When the fear weakens, consult professional counselors, support groups, or therapy for specialized tools. A pediatric psychologist can help provide targeted therapy to help the children and families in this situation. Seeking help is an important post-treatment care step and a sign of strength.